Women with endometriosis are often told they are pain-seekers and liars trying to take advantage of the health system. They are called “destructive”, “crazy”, “pretend” and “psychosomatic”. They are told that their pain may be in their minds and beyond it. Stop being — well, stop being a woman. We’re talking about teens and women with endometriosis who need diagnosis, effective treatment, and compassionate care. There is no cure, and these women deserve treatment.
Endometriosis is caused by endometrioid Cells grow outside as “lesions” Uterus – Usually located in the pelvic cavity around the ovaries, bladder, bowel, and rectum, but rarely in the lungs and elsewhere. The condition affects about 1 in 10 uterine patients, who often experience years of pain, average sevenbefore they were definitively diagnosed, need surgeryand they may take longer to find a cure.
Why are we not better diagnosing and treating this disease? Because research on female reproductive health is severely under-funded. Honestly, there’s an unfair “bad” factor too. One of the best sources of biological material to study female reproductive health is menstrual blood. Due to its stigma, menstrual blood is rarely studied in detail.
Especially now that the issue of female reproductive health has become the focus of national attention, it is time to speak freely and speak freely, discuss the problem of menstrual blood, and promote women’s health.
Menstrual blood can help researchers like me understand female reproductive health. It provides methods to explore and define the cellular, metabolic, genetic and epigenetic diversity of a healthy uterus. These features can be compared to the uterus for infertility, dysmenorrhea (dysmenorrhea), uterine infections (such as cancer-causing human papillomavirus and chronic endometritis), uterine fibroids, perimenopausal changes, and uterine cancer. And this biological sample can be easily collected without the need for invasive procedures—using a menstrual cup or specially designed external menstrual collection pads.
My colleagues and I have been focusing on menstrual blood since 2013.we established Research OutSmarts Endometriosis (ROSE) Study Learn how to collect menstrual blood at the Feinstein Institute for Medical Research and use it to study endometriosis and develop the early, non-invasive diagnostic tests these women desperately need. More than 2,000 participants were enrolled in the ROSE study (including women diagnosed with endometriosis, healthy controls, and women awaiting a diagnosis). Teenagers can also participate.we did Significant progress has been made in menstrual blood research It could one day lead to FDA-approved diagnostics and more effective and tolerable treatments that stop or even prevent disease.
Many teens and young women with endometriosis are unable to attend school due to chronic pain, preventing them from reaching their full potential. As they get older, it is difficult for these people to get promoted or keep their jobs due to excessive sick leave. Without jobs, they lose much-needed health insurance, and without insurance, their pain goes unchecked. Some people tell me they can’t have or maintain intimacy. Their overwhelming pain, which lasts a few days each month, is ignored, downplayed and misunderstood. I wouldn’t say these girls and women are suffering silently. They are speaking out, but their pain is ignored.
Currently, the only drugs available for endometriosis are hormones or hormone-based therapy, which can cause weight gain, trigger hot flashes and force patients into menopause. These drugs only treat the symptoms; they do not stop the disease from progressing. Some endometriosis patients say these hormone treatments are worse than the disease.
Could drug companies’ neglect of this common disease stem from an unintentional gender bias that puts women’s health at risk? To treat endometriosis and other female reproductive disorders, we need more support and less stigma.
Through the diligent efforts of diverse collaborating researchers from academia and industry and participating study participants, menstrual blood will be developed as a clinically useful resource for better understanding of uterine health and uterine dysfunction, as well as for diagnostic purposes Purpose. It’s no longer seen as just trash — something tossed out every month — but a biological specimen vital to women’s health.
Funding will follow as there is ongoing dialogue and demand from the public and clinicians. With funding comes more research and more progress.From a financial standpoint, since 2008, the NIH has funded approximately $176 million Fund endometriosis research.Compared to the $2 billion ulcerative colitis, it affects approximately 1% of Americans.
While menstrual blood-based diagnostics and uterine-targeted therapies may take years to develop, there are a few things we can do right now. We need to better educate the health care community and raise awareness about women’s health conditions. Based on the misdiagnosis and underdiagnosis of endometriosis and other uterine health conditions, there is a need for improved training for those attending schools of medicine, nursing, and physician assistants so that students better understand and understand that pelvic pain is real, and Each patient should be carefully investigated.
We need to raise scientific standards, improve diagnostics, provide better treatments, and provide equitable care for all. In order to do this, we need to make conversations about menstruation and menstrual blood commonplace, in clinics, in our families and in society.